Allison, TA., Balbino, RT., Covinsky, KE (2019) Caring community and relationship centred care on an end-stage dementia special care unit. Age and Ageing, afz030 published on 09 April 2019. In the final stages if dementia, caregiving is complicated by the inability of care recipientss to speak intelligbly or express their needs. This (US) study sought to examine the ways in which a nursing home end-stage dementia special care unit (SCU) functioned as a caring community for people near the end of life.
Berntsen, G., Strislan, F.,Malm-Nicolaisenm K, et al. (2019) The evidence base for an ideal care pathway for frail multimorbid elderly: combined scoping and systematic intervention review. Journal of Medical Internet Research 21 (4) Published 22/04/019. Background: there is a call for bold and innovative action to transform the current care systems to meet the needs of an increasing population of frail multimorbid elderly. International health organisations propose complex transformations toward digitially supported 1) Person-centred 2) Integrated, and 3) Proactive care (Digi-PIP care) However, uncertainty regarding both the design and effects of such care transformations remain. Previous reviews have found favourable but unstable impacts of each key element, but the maturity and synergies of the combination of elements are unexplored.
Cochrane, BS., Ritchie, D., Lockhard, D. (2019) A culture of compassion: How timeless principles of kindness and empathy become powerful tools for confronting today's most pressing healthcare challenges. Healthcare Management Forum 26 April 2019. The role of compassion in healthcare is receiving increased attention as emerging research demonstrates how compassionate patient care can improve health outcomes and reduce workplace stress and burnout. To date, proposals to encourage empathy, kindness, and compassion in healthcare have focused primarily on training individual care providers. This article argues that increasing the awareness and skills of individuals is necessary but insufficient. Compassionate care becomes an organisational norm only when health leaders create and nurture a "culture of compassion" that actively supports, develops and recognises the role of compassion in day to day management and practice.
Denecke, K., Gabarron, E., Grainger, R., et al (2018) Artificial Intelligence for participatory health: applications, impact, and future implications. Yearbook of Medical Informatics Issue 1, 2018. Artificial Intelligence (AI) provides people and professionals working in the field of participatory health informatics an opportunity to derive robust insights from a variety of online sources. The objective of this paper is to identify current state of the art and application areas of AI in the context of partcipatory health.
Duftschmid, G., Rinner, C., Sauter, SK., et al (2019) Patient-sharing relations in the treatment of diabetes and their implciations for health information exchange: claims-based analysis. JMIR Publications 7(2)
Gonella, S., Basso, I., De Marinis, MGDM (2019) Good end-of-life care in nursing home according to the family carers' perspective: a systematic review of qualitative findings. Palliative Medicine Published 10 April 2019. The purpose of this study was to identify the elements that nursing home residents' family carers perceive as good end of life care and develop a conceptual model of good end of life care according to the family perspective.
Kelley, R., Godfrey, M., Young, J. (2019) The impacts of family involvement on general hospital care experiences for people living with dementia: an ethnographic study. International Journal O f Nursing Studies 13 April 2019. People living with dementia could experience a lack of connection on multiple levels - from pre-hospital life as well as life on the ward - where they could spend kong period of time without interacting with anyone. There was great variation in the degree to which stff used opportunities to involve families in improvint connection and care. When used, the knowledgr and expertise of families played a crucial rols in facilitating more meaningful interactions, demonstrating how person-centred connections and care are possible in busy hospital settins. Despite such benefits, the involvement of families and their knowledge was not routine. Care was required to ensure that family involvement did not override the needs and wishes of people living with dementia.
Lockhart, E., Hawker, GA., Ivers, NM., et al (2019) Engaging primary care physicians in care coordination for patients with complex medical conditions. Canadian Family Physician 65(4): e155-e162. The SCOPE project proviced an opportunity for primary care physicians to build meaningful relationships, reconnect to the broader health care system, and redifine their roles.
Majid, U., Gagliardi, A. Clarifying the degrees, modes, and muddles of "meaningful" patient engagement in health services planning and designing. Patient Education and Counseling 21 April 2019.
Noordman, J., Vliet, LV., Kaunang, M., et al (2019) Towards appropriate information provision and decision making with patients with limited health literacy in hospital-based palliative care in Western countries: a scoping review into available communication strategies and tools for healthcare providers. BMC Palliative Care 18: 37. Person-centred palliative care poses high demands on professionals and patients regarding appropriate and effective communication and informed decision making. This is even more so for patients with limited health literacy, as they lack the necessary skills to find, understand and apply information about their health and healthcare.
Smith, J., Dransfield, A. (2019) Patient and carer involvement in healthcare education, service delivery and research: avoid tokinism (editorial). Evidence-Based Nursing Published 12 April 2019. Health information exchange (HIE) among care providers who cooperate in the treatment of patients with diabetes mellitus (DM) has been rated as an important aspect of successful care. Patient sharing relations among care providers permit inferences about corresponding information sharing relations.
Soklaridis, S., McCann, M., Waller-Vintar, J., et al (2019) Where is the family voice? Examining the relationship dimensions of the family -healthcare professional and its preceived impact on patient care outcomes in mental health and addictions. PLOS ONE Published April 12, 2019. This study provides in-depth information about the importance of family involvement in the care and health outcomes of youth who are accessing mental health and addiction services.